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Wednesday, December 14, 2005

nap 

I need one.

The Boy currently has some resipiratory issues going on and raising their ugly heads. Nothing serious, perhaps a cold, perhaps allergies, mostly sinus and upper airway congestion. Happens all the time. It seems as though we are in the season when it is a regular occurence and a constant battle.

That's cuz we are. And it is.

But it gets scary quickly if it moves south, into his lungs. Like potentially life and death scary in a matter of hours.

You may, my dear reader, remember that happening around this time last year. If not, the events are detailed in a three part rambling rant you may and are encouraged to fine here.

That's just one of the adrenaline junkie loving perks of loving and raising a child with severe multiple physical and cognitive disabilities. The lil' buggers are prone to damnned near everything.

Last night was one of those basically sleepless autumn nights, checking on The Boy while he slept. We were continually monitoring the oxygen levels in his blood, trying to sleep with one ear open to the potential sound of the machine alarming when the level drops to low.

This started happening every few minutes around 5:00 am.

At least every two hours you carefully turn him from one side to the other, hopefully without waking him, in order to prevent the congestion accumulating in his lungs from pooling and turning into pneumonia.

I am quite proud to say we are currently winning the battle. The Boy is a little "gunky" (yes, that is apparently a medical term, as the school nurses use it frequently to describe sinus and other respiratory congestion), but otherwise fine.

And I, well I'm enjoying the giddy slightly surreality that comes with not sleeping.

And I'm not gonna get my nap.

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